“Mom sobbed something into Dad’s chest that I wish I hadn’t heard, and that I hope she never finds out that I did hear. She said, ‘I won’t be a mom anymore.‘”
“Whenever you read a cancer booklet or website or whatever, they always list depression among the side effects of cancer. But, in fact, depression is not a side effect of cancer. Depression is a side effect of dying. (Cancer is also a side effect of dying. Almost everything is, really.)”
“I hated hurting him. Most of the time, I could forget about it, but the inexorable truth is this: They might be glad to have me around, but I was the alpha and the omega of my parents’ suffering.”
“It occurred to me that the reason my parents had no money was me. I’d sapped the family savings with Phalanxifor copays, and Mom couldn’t work because she had taken on the full-time profession of Hovering Over Me.”
“There is sickness rolling through my body; I’m neither strong nor healthy, and my days are spent like an old party balloon: listless, spongy and growing softer over time.”
“As a resident, my highest ideal was not saving lives—everyone dies eventually—but guiding a patient or family to an understanding of death or illness.”
“I recall the sun filtering through the magnolia tree outside my office and lighting this scene: Paul seated before me, his beautiful hands exceedingly still, his prophet’s beard full, those dark eyes taking the measure of me . . . I remember thinking ‘You must remember this,’ because what was falling on my retina was precious. And because, in the context of Paul’s diagnosis, I became aware of not just his mortality but my own.”
“In this room, I had sat with patients and explained terminal diagnoses and complex operations; in this room, I had congratulated patients on being cured of a disease and seen their happiness at being returned to their lives; in this room, I had pronounced patients dead . . .”
“I sat, staring at a photo of Lucy and me from medical school, dancing and laughing; it was so sad, those two, planning a life together, unaware, never suspecting their own fragility.”
“The tricky part of illness is that, as you go through it, your values are constantly changing. You try to figure out what matters to you, and then you keep figuring it out. It felt like someone had taken away my credit card and I was having to learn how to budget. You may decide you want to spend your time working as a neurosurgeon, but two months later, you may feel differently. Two months after that, you may want to learn to play the saxophone or devote yourself to the church. Death may be a one-time event, but living with terminal illness is a process.”
“My life had been building potential, potential that would now go unrealized. I had planned to do so much, and I had come so close. I’ve spent almost a third of my life preparing for it. I had mapped out this whole forty-year career for myself—the first twenty as a surgeon-scientist, the last twenty as a writer. But now that I am likely well into my last twenty years, I don’t know which career I should be pursuing. If I had some sense of how much time I have left, it’d be easier. If I had two years, I’d write. If I had ten, I’d get back to surgery and science. If only I knew how many months or years I had left. Tell me three months, I’d spend time with family. Tell me one year, I’d write a book. Give me ten years, I’d get back to treating diseases. The truth that you live one day at a time didn’t help: What was I supposed to do with that day?”
“Medical training is relentlessly future-oriented, all about delayed gratification; you’re always thinking about what you’ll be doing five years down the line. But now I don’t know what I’ll be doing five years down the line. I may be dead. I may not be. I may be healthy. I may be writing. I don’t know. And so it’s not all that useful to spend time thinking about the future—that is, beyond lunch.”
“‘When people don’t express themselves, they die one piece at a time. You’d be shocked at how many adults are really dead inside - walking through their days with no idea who they are, just waiting for a heart attack or cancer or a Mack truck to come along and finish the job. It’s the saddest thing I know.’”
“Of course Anna should be honored for donating her bone marrow. Of course she deserves recognition. But the thought of rewarding someone for their suffering, frankly, never entered my mind.”
“This year is a little harder than the previous. Maybe it’s because I’m eighteen now. Technically, I’m an adult. I should be leaving home, going off to college. My mom should be dreading empty-nest syndrome. But because of SCID, I’m not going anywhere.”
″ ‘It’s better this way. I don’t want you to have a broken heart.’
‘Love can’t kill me,’ I say, parroting Carla’s words.
‘That’s not true,’ she says. ‘Whoever told you that?’ ”
“He’s much too smart to fall for this, but he wants it to be true. He wants it to be true more than he wants the truth. The smile that breaks across his face is cautious, but so beautiful that I can’t look away. I would lie to him again for that smile.”
“I don’t leave my house, have not left my house in seventeen years. The only people I ever see are my mom and my nurse, Carla. But then one day, a moving truck arrives next door.”
“You’re going to have to be flexible, Alexander. Our family is going through a real crisis. In the Chinese language, do you know what the characters for ‘crisis’ are? ‘Danger’ plus ‘opportunity’. Maybe your mother’s illness will offer you an extraordinary opportunity.”
“We are made up of different parts, some good, some bad, and a healthy mind can tolerate this ambivalence and juggle both good and bad at the same time. Mental illness is precisely about a lack of this kind of integration - we end up losing contact with the unacceptable parts of ourselves.”
“I returned the box to its hiding place. It could be worse, I thought. The house is still standing. We’re alive. Mother and Eliza must be somewhere safe, I had to believe that. The fever would soon be over, and our lives would return to normal. I just had to stay clever and strong and find something to eat. A tear surprised me by rolling down my cheek. ‘None of that, Mattie girl,’ I whispered to myself as I scrubbed the tear away. ‘This is not the time to be childish.‘”
“They were not medical problems to rehabilitate. We were not medical problems. I was never going to undo the damage polio had done to my nerve cells and walk again, nor was this my goal. The disabled veterans coming home from the Vietnam War were never going to grow their limbs back or heal their spinal cords and walk again. My friends with muscular dystrophy were never going to not have been born with muscular dystrophy. Accidents, illnesses, genetic conditions, neurological disorders, and aging are facts of the human condition, just as much as race or sex.”
“Years afterwards, Katy told somebody that the longest six weeks of her life were those that followed this conversation with Papa. Now that she knew that there was no chance of getting well at once, the days dragged dreadfully. Each seemed duller and dismaller than the day before. She lost heart about herself, and took no interest in anything.”
“Thus the maid went from illness to illness until, one day, she died. Alfanhui and his master buried her in the garden with a headstone etched in vinegar saying: Selfless and Silent.”
Jo, living in the darkened room, with that suffering little sister always before her eyes and that pathetic voice sounding in her ears, learned to see the beauty and the sweetness of Beth’s nature, to feel how deep and tender a place she filled in all hearts, and to acknowledge the worth of Beth’s unselfish ambition to live for others, and make home happy by that exercise of those simple virtues which all may possess, and which all should love and value more than talent, wealth, or beauty.
The first of December was a wintry day indeed to them, for a bitter wind blew, snow fell fast, and the year seemed getting ready for its death. When Dr. Bangs came that morning, he looked long at Beth, held the hot hand in both his own for a minute, and laid it gently down, saying, in a low voice to Hannah, “If Mrs. March can leave her husband she’d better be sent for.”
“She felt so ill one day that she told Jo she wanted to give her piano to Meg, her cats to you, and the poor old doll to Jo, who would love it for her sake. She was sorry she had so little to give, and left locks of hair to the rest of us, and her best love to Grandpa.”
“That poor child,” said Madame de Villefort when Valentine was gone, “she makes me very uneasy, and I should not be astonished if she had some serious illness.”
“It is because I am very ill,” he decided grimly at last, “I have been worrying and fretting myself, and I don’t know what I am doing.... Yesterday and the day before yesterday and all this time I have been worrying myself.... I shall get well and I shall not worry.... But what if I don’t get well at all? Good God, how sick I am of it all!”
“I really don’t know what drew me to her then—I think it was because she was always ill. If she had been lame or hunchback, I believe I should have liked her better still,”